my first pilates session went down a treat... it was challenging but in a very good way. I was surprised just how relaxed I felt afterwards, and slightly nauseous (probably should eat something beforehand next time 👌) so I've booked myself in for a full course starting next week. my consultant at the hospital suggested pilates, pain clinic and change of pill... the three P's. here goes nothing!
If you can't see an illness, don't be ignorant and believe it's not there! Unless you've bled internally, pee red, have ovary parties or the constant aches, pains and fatigue, you just don't know!
I'm on day one of my cycle. I'm bleeding internally. It hurts. 😔😔 #endometriosisawareness #endosufferer #yellowribbon #raiseawareness
Yesterday was international endometriosis awareness month. 1 in 10 women* suffer from this insidious disease, me included. I’m about to have my 5th surgery in the past 9 years to try and help the pain and symptoms of endometriosis, even for a short while (2nd surgery was official diagnosis and my 3rd surgery was a bit more than a year later). 176 million people world wide suffer from this disease, the same amount of sufferers of diabetes, but receive little funding. Yesterday, mum and Aaron came with me to the endometriosis Australia high tea in Sydney. Endometriosis needs more awareness and more funding. Love to all the endo warriors out there 💛💛💛 *not all women have endometriosis. Trans men can have it too. #endo #endometriosis #endometriosisawarenessday #endometriosisawareness #endometriosisawarenessmonth #endosiblings #endosufferer #endowarrior #pain #1outof10
I’m so glad to be back at home after 5 days in hospital. I can’t fault the NHS and the care I received but it’s definitely easier to rest in the comfort of my own home and with @justinbutcher
looking after me.
I’m excited to wear clothes again after 5 days of hospital gowns and nightwear although I’m a little restricted with what I can actually wear due to another week of having a catheter and wearing a bag on my leg....it’s as well I’ve a wardrobe full of dresses and long skirts!! Got a few deliveries while of some bits I ordered online while under the influence of strong pain meds....so trying to decide what to wear...not a bad problem to have 🤪😎😁
#recoveringathome #endometriosisawareness #endosufferer #endosisters #day6postsurgery #endometriosisexcision #mididress #midiskirt #catheterization
🌸ENDOMETRIOSIS & WEIGHT🌸
I see so many ladies with endo struggling with their weight. When you’re fighting an illness that makes you feel tired, gives you pain, makes you feel low, working out can be HARD, cooking meals can be HARD. For me personally, I just want to curl up at the end of each day with some nice food and not move & this has gotten me into a big rut! I’ve watched the weight pile on which in turn, makes me feel even worse. It’s like a vicious circle and a constant battle with myself. I’m sure many of you ladies can relate to this.
Well I’ve decided that today’s to the day I get my life back!
I’ve bought myself a lovely new mermaid notebook to keep track of my food and a glittery mermaid water bottle to keep track of my water intake 💦(does anyone else buy themselves shit for motivation ? 😂) I’ve also dug out my #Fitbit
so that I can track my dog walks & any exercise I do (when I feel ready).
For such a long time, I’ve been kidding myself into thinking that I don’t care how I look or how I feel or what other people thing of my weight gain. I felt that this was the best attitude to have but probably only to protect myself. In reality, I feel miserable & I’m not afraid to admit that now. So I’ve decided to do something about it.
It’s not going to be easy.. there will be days when I feel too tired to work out or in too much pain to stand and cook a meal. But I’m not going to use Endometriosis as an excuse anymore and let it dictate my life. The bottom line is, Endometriosis or not, I’m lazy, I eat WAY too much of the wrong foods and I’m unfit. It’s time to change that ⛅️💪🏼
#endowarrior #battlingendo #endosufferer #endosisters #motivation #weekendmotivation #healthyliving #fitness #fitnessmotivation #helpmereachmygoal #endometriosis #endoawareness #workout #healthyeating #foodplanning #settingtargets #timeforchange #womenshealth #weekendmotivation #workout #training #gymmotivation #foodprep #mealplanning #mealprep
My recovery has been a little up and down. I was excited to be off oxygen and have catheter removed yesterday only to have them both back again within an hour. It’s all very normal part of recovery from endometriosis excision surgery, patience is needed to give your body time to recover and heal. I’m trying to remember to take deep breaths so that I don’t have to go back on oxygen but unfortunately the catheter looks likely to stay for a week.....it will probably be coming home with me 😩😱😲
I had another visit from one of my surgeons this morning who is very pleased with my progress which is helping to keep me positive.
I can’t fault the staff at St Mary’s hospital, they are so caring and helpful which most certainly is making my hospital stay more bearable.
One major downside is the food and no matter how positive I am trying to be the food is beyond disgusting!! 🤢🤮
#endometriosis #surgery #hospital #recovery #grateful #endometriosisawareness #endo #endometriosisawarenessmonth #endosisters #endosufferer #stage4endometriosis
📋A letter to my doctors📋
I am not a drug seeker. I don’t come to you for a morphine fix. I come for answers to unrelenting pain. I am a 20year old mom. I am going broke because I can’t work. I am struggling daily to just exist never mind be a good parent due to this disease. I come for help. But instead I’m turned away yet again. The other day someone told me that I “look sick”. Damn. It’s gotten to the point where my body is showing signs on the outside of how sick I really am. Yet somehow I’m not sick enough to get help? Tell me again I’m not disabled when I have to call my fiancé to rush home from work to take me to the hospital (again) because the pain is too much and I can’t stand let alone hold my daughter. Or when I’ve fainted so many times I stop being alarmed when a bruise appears on my face or body. Or when I’m in so much agony no pain relief method touches it but I know going to the hospital won’t do me any good because I will just be sent away. Please, this needs to change. Endometriosis is a full body disease that is so incredibly overlooked and undermined. We want treatment, we want help, we want pain relief. We don’t just want drugs.
𝒪𝓃𝑒 𝓈𝒾𝒸𝓀 𝑔𝒾𝓇𝓁
#endometriosis #endosufferer #endowarrior #endometriosisawareness #pain #chronicillness #invisibleillness #chronicpain #endomom #endometriosistattoo #girlswithink #girlswhosmoke #deardoctors #letterboardquotes #letterboard #sickgirl #sickgirlclub #endotribe #spoonie #spooniesisterhood #scoliosis #thespoonienetwork
i always try to have the belief that things will get better someday, if not now, maybe tomorrow, maybe a few months down the line.
feeling super blessed at the moment with the people surrounding me, and my support network keeping me going. feel so positive which makes a change! woaaaah.
trying pilates for the first time this week, so if there's anyone who has tried them let me know how you got on 🧘♀️
📢📢. NOW LIVE. 📢📢 Endometriosis & Me 💛
Amazon UK ➡️ goo.gl/TG3J49
Amazon US ➡️ goo.gl/jXpaiY
Amazon AU ➡️ goo.gl/nxa8r2
Amazon CA ➡️ goo.gl/kGgRW2
iTunes ➡️ goo.gl/wtcNQQ
Barnes & Noble ➡️ goo.gl/z9JKHi 💛
Why don’t women discuss their periods with their friends more?
Why do advertising companies for pads use blue liquid instead of red?
Why the shyness regarding something that is completely natural?
When I received my endometriosis diagnosis in 2010, my first response was – what the hell is that? I’d never discussed my period with friends. If I had, would I be where I am today? Having believed I’d finally found the problem to all the pain I still suffer from, I thought things would be alright. However, I hadn’t known that I’d needed to understand the disease and the effect it would have on my body. Even now, endometriosis is a minefield, but the way forward for all the women who suffer from it is to talk about it. To share their stories. To help each other.
I wanted to write this journey because I need to finally feel what I’ve been through. Women are good at brushing aside their problems; or are guilty of not feeling their way through hard situations because they deal with things.
We just deal.
For me, I need to feel what I’ve been through so that I can finally heal. I hope that writing this helps someone who is either struggling with endometriosis or who wants to know what to expect with I.V.F. This is my journey.
#authorsofinstagram #writersofinstagram #newrelease #newbook #endometriosisawareness #endosufferer #yellowribbon #marchisendomonth #letstalkperiods #newbook #IVF #ivfjourney #fertility #endodiet #mylife #myjournal #yournextread #mustreadbooks
It’s time 😫... So I’ve put off taking the pill for the last year. This was for loads of different reasons;
I HATE putting any kind of s*** into my body, I hated the way it was making me feel, I always forgot to take it! 🙈 bringing on a lovely bit of spotting every time ... the list goes on!!
However, my pain is becoming unbearable recently and I’ve been told I need to try 3-6 months back on the pill, we’ll then look at propstap injections or a 3rd operation.
I’m honestly gutted at all 3 of these outcomes 😥 I hate that this illness dictates what I’ve got to do with my life/body!
If you’ve read my previous posts you’ll know I have a phobia of treatment .. particularly the pill or the injections. I’ll keep you posted 😫
#contraceptivepill #birthcontrol #periods #womenshealth #menstrualhealth #endotreatment #endosufferer #endowarrior #chronicillness