#chronicillnesses

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💫✨Soul Food Talk✨💖💫Allowing people into your life is a beautiful thing but letting people go who are hurting you and draining your spirit is also a good thing. The key to being happy is knowing you have the power to choose what to accept and what to let go. Nutrition is vital to keeping healthy but so is living your truth and walking your authentic path. Keep yourself surrounded by people and things that make you feel good, that keep you vibrating higher.🙏💆 Keep gratitude in your heart. Wake up feeling alive. Thank your heart everyday, we don't realize how hard our heart has to work everyday, every second, every minute since the day we were born. So put your hand on your heart and thank it for keeping you alive.❤❤❤❤ We are here to LOVE...We are here to be LOVED. We all deserve to be surrounded by people who truly love and support us. L.D ❤🙏✨💫💖🌈 #followyourintuition #trusttheprocess 💯 #liveyourtruth 💯 #surroundyourselfwithhighenergybeings #selflove #feelthevibes #spiritualityawake #trustyourgut #letgoandletgod #believe #liftedlifestyle #vibrationalenergy #noimnotcrazy #feelwhatyoufeel #takayasuarteritis #Vasculitis #chronicillnesses #autoimmune #chooselove #invisibledisability #takayasusurvivor #instagood #instagramphotos #mindfulness #spiritualenlightenment #inspire #wellnessjourney #instalike #love
As an entrepreneur, it's in my DNA to dream big.⁣⠀ ⁣⠀ As a #spoonie it's in my heart to dream about a place and time where I'm at peace with my body.⁣⠀ ⁣⠀ Top of that list for me is anywhere I can feel a cool breeze, sit in the sunshine, and listen to the ocean waves.⁣⠀ ⁣⠀ Where is that place for you Spoonie Warriors?⁣⠀ ⁣⠀ .⁣⠀ .⁣⠀ .⁣⠀ ⁣⠀ #divadenguthrie #guthrie #guthrieok #chronicallysick #invisiblepain #chroniclife #invisibleillnessawareness #chronicallyawesome #zebrawarrior #girlswithguts #morethanconquerors #peoplehopetribe #patientadvocate #spooniecommunity #disabilityblogger #youcandoanything #chronicloveclub #warriorup #raredisease #thespooniesisterhood #chronicgirlgang #chronicillnesses #chronicinsta #letsflyawayto #travellust #myhappyplace #myhappyplace#beachlifestyle #beachlife 🌴
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#day112 #365balanceproject . It’s been a long hard slog at work since Christmas and my ear is going crazy. But finally in #spain for a good rest over the Easter break hopefully my ear calms down #menieresdisease #menieres #deaftomenieres #365project
You don’t always have to be grateful that it isn’t worse. After going to the rheumatologist and literally having all my health problems listed out, I want to feel a little upset that my health isn’t what it used to be, but I do try to stay positive and do be grateful the other times because I know it could be a lot worse, even on the spectrum of EDS and Fibro. Stay positive and grateful but also let yourself feel whatever you need to feel whether that’s anger, sadness, or relief and joy.
My daughter, Ash, wrote this after a major panic attack at school last year, on Friday November 2nd, 2018 …. She gave me permission to share it!!😔 She also said to mention that when she says "hate her with my fiery heart" in relation to me she's talking about her temper & how she doesn't like to treat me that way .... & she doesn't hate me 💞(phew 😉💞)....!! Anyway it's a long read & made me cry .... beautifully written 💞 . #nomorestigma #nomoreshame #chronicpain #chronicillnesses #healingfromtraumas #knowyourtribe #stress #grateful #thankful #blessed #mentalhealth #mentalhealthawareness #mentalhealthmatters #depression #anxiety #selfharmawareness #selfharmprevention #suicideawareness #suicideprevention
Another day, another ER visit... It’s so frustrating to be at the mercy of whatever is causing my illness. Not knowing what’s wrong makes it impossible as a patient to know what to do/avoid to stop these episodes coming on. For now I’m tucked in a small room in the ER waiting room hooked up to fluids and waiting for a bed. I’m glad to be getting treatment but just wish I wasn’t here. For now I’ll close my eyes and hope that tomorrow is a better day. Sending positive vibes and good thoughts to all of you out there that are struggling too! . . . . . . . . . #spoonie #spoonies #spooniegirl #spoonielife #spooniestrong #spoonieproblems #spooniewarrior #spooniesisters #chronicallyill #chronicillness #chronicillnesslife #chronicillnesswarrior #chronicillnesswarriors #chronicillnesses #hospital #hospitallife #hospitallife 🏥 #hospitalized #iv #ivport
I believe we need this mindset. It sets us up for positivity, which is necessary for healing. ⠀ ⠀ The CDC says that 1 in 4 children have chronic illnesses now. And that statistic is only for the illnesses that are identified.⠀ ⠀ I believe that a lot of this is due to the toxins in food we eat today and overall lack of nutrients. ⠀ ⠀ If you are wondering if certain foods are contributing to symptoms you see in your child, check out the "how to do an elimination diet" guide in the link in my bio.⠀ ⠀ And always, I believe that when we keep searching for ways to help our children, answers do come. ⠀ ⠀ #eatwelllivewell #nutritionnatters #guthealthmatters #healyourbody #removetoxins #eliminationdiet #positivityiskey #youarestrong #trustyourintuition #chronicillnesses ⠀ ⠀ ⠀ ⠀ ⠀
I am so incredibly grateful for the few people helping me find my way thru this dark time... A time I need them the most ❤️ . Repost: @yung_pueblo . 👌💯🤗💫❤️☀️➡️🌞 . . . #Recovery #Healing #ChronicIllnesses #Thankful #Grateful #MindfulLiving #MindfulMoments #ChangeTakesTime #RemeberWhoLovedYouWhenYouFeltUnloveable #MyHopefulHealingJourney
#day111 #365balanceproject . The recommendation is you should be targeting 2 litres of water a day to keep you hydrated when you have #menieresdisease . Here is a motivational water bottle to help you 😊😊 #menieres #deaftomenieres #365project
If this picture was a movie, would it be R🅰️TED X-Men? 🎬 ●●●●●●●●● Another cool #cosplayphoto from #wondercon in my #psylocke by Sugarpuss designs. I have had several messages about the bootcovers and how they work etc - Jen (Sugarpuss designs) offers leggings with this outfit - but I wanted boot covers so I actually made the boot covers I am wearing. Essentially it's a glorified "sock" with a hole for the heel of the character shoe. I then had my mom sew the upper hem of the bootcovers to my tights so they would stay in place. The trick to effective costuming is thinking outside the box to achieve in the real world aesthetics that came to life as a cartoon / comic / anime etc. For female characters, wearing tights allows me to anchor unrealistic gravity defying leg stuffs in a way not possible with bare legs. Here I am wearing Capezio tight in suntan. In my case, the tights also help protect my skin since I have #lupus #fibromyalgia #hashimotos and #arthritis ❤ ●●●●●●●●● Did you know I have 3 autoimmune diseases and arthritis in my spine? Pledges to help me afford my medical care for my #chronicillnesses If you like what I do, consider supporting my ART on P🅰️TRE🅾️N SEE EXCLUSIVE STUFF ⬇️⬇️⬇️⬇️⬇️⬇️⬇️⬇️ WIP / Crafting / BTS / Selfies are ONLY on P🅰️TRE🅾️N ❤ LINK IN BIO ❤ ●●●●●●●●● ■■■■■■■■■ Photo: The Photo Owl 📷 Cosplay: @sugarpusscostumes 👕 Boot Covers: By Me 👑 My Personal account: @taracosplay ❤ Character: Psylocke 🌟 Lashes: @Ariabella.lashes (Lillianna) 👑 Wig: @evahairofficial 😎 ●●●●●●●●● Come see me at @animepasadena April 20 BOOTH B4 Cosplay Room ●●●●●●●●● #wondercon2019 #wonderconcosplay #xmencosplay #marvelcosplay #xmen #marvelcomics #psylockecosplay #xmencomics #taracosplay #taranicoleazarian #chronicillnesswarrior ●●●●●●●●●
🌿🌷Spring Box Spoiler #2 !🌷🌿 Which flavor of ✅handmade, ✅small-batch, ✅artisan fudge from @blue_moose_sweets do we love most? 💚The Mint Chocolate, with it’s perfect blend of chocolate and creamy swirls of minty goodness? 💖Or maybe the decadent Raspberry Chocolate Truffle, made with real raspberry mash? 🧡But what about the OG — Belgian Chocolate? Just a small bite melts on your tongue and fills your mouth with an flood of rich chocolate. 💜💜💜 Every subscriber will get a quarter pound of one of these incredible fudges in their Spring Box! 💐 We’re especially thrilled that they’ve passed our gluten-free standards: all of our staff and family members with celiac disease and gluten intolerances have tried all the flavors safely and without reactions. And for our subscribers with food coloring allergies — don’t worry! Your boxes will include the Belgian Chocolate, which does not contain any colorings. We see you, and we’ve got your back. 🌷 And they’re not just a scrumptious indulgence — they’re powerful tools you can use to practice mindfulness. We’ll teach you how to use your senses of taste, touch, smell, and sight to ground yourself when you’re anxious or overwhelmed. 🌿 If you haven’t signed up, there’s still time to get the Spring Box! ⏱ We have a few slots left. Just head over to HavenTree.shop or use the tagged product in this picture to claim your spot. 💐 Which flavor do you want to try most??? • • • • #havntreebox #haventreespringbox #haventreespoilers #subscriptionbox #mysubscriptionaddiction #selfcarebox #divorce #selfcare #selfcarehacks #mentalhealthrecovery #therapistsofinstagram #anxietyhelp #spoonie #chronicillnesses #glutenfreetreats #socialworkerlife #practicemindfulness #mindfulnesspractice #selflovefirst
“...I was becoming the most beautiful version of myself, and I naively believed that nothing could change that. I would just continue on this upward trajectory of growth forever...My confidence was high, my hope was abundant, and my growth was on an incline. ⠀ With a mentality like this, the changing of the seasons is always shocking and confusing. No one had ever told me that with remission comes the threat of relapse. I was completely caught off guard the day that I walked into school on my own two feet and left in a wheelchair just a few hours later...” ⠀ CONTINUE READING — peoplehope.org (link in bio) ⠀ ⠀ Photo capture from #peoplehopetribe by our friend @wellnesswithyamile ! ⠀
I can't count the number of times a doctor has looked me right in the eye and told me my symptoms or side effects do not exist. Rather than saying "I've never heard of this," I've repeatedly heard "that doesn't happen" or "that's impossible"...often followed by a comment, blaming it on an insulting catch-all factor like "stress." Doctors don't realize how psychologically damaging these flippant declarations are to their patients with complex chronic illness who come to them in a deeply vulnerable and impressionable state. I've even been told my side effects were impossible when they were listed in the top 5 adverse reactions right in the drug literature! Blatant denial of a patient's legitimate experience has become the norm in medicine, but it's a monumental roadblock in the healing process. You cannot heal someone by denying their reality. A patient's personal narrative holds the key to recovery, yet doctors often toss out relevant details in hopes of neatly placing the patient into a preconceived category. It's one of the biggest problems I've encountered in my journey and I know I'm not alone (feel free to repost if it's happened to you!). Cheers @hannah.davisbennett for the image.
I have been living with an autoimmune disease for 13 years now. This is definitely a touchy topic for me. It's been a struggle coping with it all these years and I can't believe I have come this far in dealing with it. I simply don't talk about it because I don't want the sympathy, the sorries (if that's a word) or the worry of people. I hardly EVER talk about it to anyone. I feel like it's time to share the biggest struggle in my life. I have a lot to say about my experience, but I can't compile it all into one post. I'm hoping to share more of my past and recent experiences with those of you going through similar situations. Stay strong ❤️ . . . . #mom #momlife #livingwithanillness #chronicillness #chronicillnesses #chronicillnessawareness #autoimmunedisease #autoimmunedisorder #vasculitis #vasculitisawareness #vasculitiswarrior #health #healthandwellness #healthandwellnessjourney
I have been going back ro the gym a lot. Even if its just walking for a mile on the tredmile. Or however long I can do that day. And I won't lie. It is hard as hell. It leaves me in so much damn pain. And mentally I hate myself for putting myself through so much extra pain. So yeah. It is hell. But my doctors have always said moving will help me in the long run. But... Idk... I just hurt a lot. So I pop an extra Tylonel and I walk some more. Because there are somethings that I just Have To do because of my illness. And this is one of them... . . #chronicillnessbadday #chronicillnessawareness #chronicpain #chronicillnessgoodday #chronicillnesses #chronicallyill #chronicillness #chronicillnesswarrior #chronicpainwarrior #spoonieproblems #spoonies #spoonie #spoontheory #cysticfibrosis #cf #cfs #smallfiberneuropathy #fibromyalgia #lupus #potssyndrome #eds #gastroparesis #cancer #arthritis #dysautonomia
I won’t pretend that I have my ish together because I don’t. My husband and I are riding the struggle bus....from hell or so it feels like. 🤣 He was diagnosed with MS two years ago and I have suffered from severe chronic back pain that is unexplained for the last eight years. I should mention, I also have had type 1 diabetes for 35 years and a plethora of other ailments including anxiety, depression, and dermatillomania or skin picking which has been a new diagnosis. 😳 Are you wondering how the heck we are still standing? Lol All these things have really done a number on me. Mentally and physically. I used to be an X-Ray technologist. I am unable to stand for long periods of time or walk very far. It has made my life Very difficult. Makes me feel like I am 94 and not 44. Can’t carry my Grandkids or play with them at the park or walk around with them. In turn, that makes me depressed. I can’t be the woman, the Grandma, or the wife that I want to be. Guess what? I am ready to change ALL that! Thank You to all these wonderful people and posts on IG, I am so inspired to change and to take steps to become the woman, Grandma and Wife that I KNOW I can be. I have my makeup business. My husband is making a career change. We are moving closer to the Grandkids/family and friends. Life is looking up for us, for me. I will become a better woman in all aspects of my life! Thank you for reading part of my story and thank you to all that have inspired me and to those that continue to inspire others. I hope someday to be an inspiration to someone and pay it forward. 😊 . . . . . #wednesdayvibes #chronicillnesses #chronicbackpain #changingmylife #dermatillomania #betteringme #beingabetterwoman #instaquote #type1diabetes #anxietyanddepression #iwantmylifeback #iwillgetmylifeback #skinpicking #compulsiveskinpicking #needlessstress #iamaworkinprogress #igotthis 💪 #watchme #makeupover40withkellycalvin
So I saw the Internal Medicine doctor today and they are no closer to a diagnosis at this point. They know something is really wrong but as for what, it’s still an unknown. Being a medical mystery is exhausting and I would give anything for a diagnosis. For now I will probably need some more biopsies and we’ll go from there. I have a whole team of amazing specialists who are working so hard to try to help me but I may end up needing to go to the @mayoclinic to see if they can figure out what’s going on. I will keep praying for answers. . . . . . . . . . #spoonie #spoonies #spooniegirl #spoonielife #spooniestrong #spoonieproblems #spooniewarrior #spooniesisters #chronicallyill #chronicillness #chronicillnesslife #chronicillnesswarrior #chronicillnesswarriors #chronicillnesses
(Ad) It has been 11 months since we started trying to figure out what is going on with my health. It has been a long journey to say the least! We started talking about medical alert systems a few months ago as a way for my family to feel more comfortable leaving me home alone for more than a couple hours. It feels really weird to only be 41 and need to wear a medical alert device, but I agreed. It was super easy to set up and it's even easier to use. If you want to read about the system we went with - @officialbayalarmmedical - the link is in my bio. I go over why we chose the system, how to set it up and all of the alert devices the system comes with. We're happy with it! Be sure to read my full review at the link in my bio.⁣ ⁣ #bayalarmmedical #medicalalertsystems #medicalalertdevice #healthjourney #shareyourstory #documentyourjourney #medicaltechnology #spooniemom #chronicillnesswarrior #healthiswealth #chronicillness #chronicpain #spoonie #chronicfatigue #spoonies #spoonielife #butyoudontlooksick #chronicallyfabulous #chronicillnesses #floxie #medtech # #letsgetreal #livethoughtfully #letyourlightshine #dreamersanddoers #happymothering #sicklife #momsofinstagram #igmama #wellnesswednesday
sorry for not posting!! i'm in the middle of recovery from the longest gig i've ever played. so i haaaaave to talk about it. i've been so stressed over this gig that i still haven't really realized it's over,,, but it is!! and i'm happy!! - i got up at 9am, the gig started at 1pm, and we were done at 11! 10 hours of constant noise lol. i got home to my boyfriend's place after 2am sometime. (my friends kept asking me how i was even alive, i'm still asking myself the same thing) - after about 2-3 hours i already felt 10 times worse. i felt sooo sick and my head ached like a bitch. going up on stage almost felt impossible but i did and it went great! yay me - sunday was HELL (the gig was on saturday). i couldn't leave my boyfriend's bed, and i struggled so hard to keep my head up. i felt so ill, almost like i had gotten the flu, and trust me that is SO confusing cause you really have no idea if it's just PEM or if you're actually sick. - i'm doing a little better now though, but i think it'll take me a few weeks to fully recover from all stress and all the sudden walking and talking i had to do. but i'm proud of myself! - and a big shoutout to my bandmates who made everything SO much easier, i couldn't be happier<3 - gotta take my meds and drink some water now, hope you're all good🖤
My sweet little punkinhead! I live this sweet creature so soooo much! She makes me feel so much less isolated in the bad days living with #chronicillnesses ... on the good days she’s so playful and sweet!! Always as skidding as ever! #lunaskye #whitecatsofinstagram #catsofinstagram
i am so extremely excited to announce that today was one of the best days ever!! i’ve made it to the 5th six weeks in all of my classes so im caught up a lot more than what i thought except algebra (but that’s okay because im gonna keep working on it). im in a lot less pain than usual i think mostly because i started new medication and i’m less overwhelmed. and the best part is.. I have no infection!! and i don’t have to do any immediate testing or surgeries that i know of yet. i was more than happy when i heard all of this. i feel so blessed🙏 again, thanks for all the support:))
Are you a "perfectionist"? A "procrastinator"? Check out this weeks episode Raw & Unscripted with Christopher Rausch Available starting Tonight 10:30 ET! Chris pulls no punches when it comes to how he realized his own challenges with perfectionism would lead him into procrastination! He will share some valuable tips and insight that you can use to make sure you truly are #UNSTOPPABLE Raw & Unscripted the show that helps you get to the core of the problem without all the self help fluffy bullshit! Check it out on your favorite podcast platform! Speaking to the Heart Podcast Network speakingtotheheart.org To learn more visit our website! ☝ ____________________________________ Spotify https://spoti.fi/2SvW3az Facebook http://bit.ly/2J6H0yB Google Play http://bit.ly/2fnIrIc iTunes http://bit.ly/SpknToHrt Youtube http://bit.ly/STTHYoutube Spreaker http://bit.ly/STTHSprk Stitcher SpeakingToTheHeart https://ecs.page.link/1nZfv 🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥 #lifecoach #personaldevelopement #happiness #transformation #productivethinking #motivation #inspiration #personalgrowth #mindset #successtips #intentions #lifetips #mentorship #backpain #musclepain #chronicillness #chronicpain #chronicillnesswarrior #invisibleillness #spoonielife #butyoudontlooksick #chronicfatigue #chronicpainwarrior #spooniewarrior #chronicillnesses #disability #depression #kickass #podcast
🚨NEW ARTICLE🚨 What does growth look like if you feel like you’re just withering? Back by popular demand, our very own @ally_zins is opening up in “GROWTH IS NOT LINEAR.” ⠀ READ NOW — peoplehope.org ⠀ (link in bio) ⠀
NOT EVERYONE IS READY TO HEAL . I know. Bold statement, right. But it’s true. I’ve even been there myself. We say we want to have more energy, a richer life, more friends, less pain. And we might think that we are trying, but are we really? Are we really doing these uncomfortable things that might actually make us heal? Or are we just half-assing healing by doing the ‘easy’ parts. . Let me give you an example: Are you staying home resting from that awkward family dinner you didn’t even wanna go to anyways and using your health problems as an excuse OR are you staying home resting when your body is screaming for rest but your ego wants to go to this fun party or shop new clothes? . And I get it, sometimes it’s not even possible to go to that fun party (or even the supermarket down the street) even though you want to. But want I want to say with this is that healing is not just the easy choices. It’s about looking at the parts you haven’t been willing to look at before. Doing the things that you have resisted that seem too hard or unpleasant. . Because what most people with fatigue are masters at, is to push through and listen to the ego more than the body. And that’s what needs to change if you ever want to get better. . Are you ready to heal? Are you ready to commit to your healing fully? Take it one step further? . I’d be happy to help you. I can’t do it for you but I can guide you on your way, help you problem shoot what in your healing you are missing and make a plan to move forward. . There are still a few spots left in my group program Divine Feminine Healing that starts May 2nd. Today is the last day for the early bird price. Link in bio for more info. . Love you all 💖 . . . . . #medicalmediumprotocol #fibromyalgiaawareness #invisibleillnessawareness #fibromyalgiawarrior #cfsme #autoimmunewarrior #chronicillnesses #fatigued #adrenalfatiguerecovery #chronicfatiguesyndrome #utmattningssyndrom #hypothyroidismweightloss #millionsmissing #spoonieproblems #spoonies #canyouseemenow #burnoutsyndromes #mentalhealthawarenessmonth #fillyourcup #justbreathe #healingnaturally #meditationspace
Spring cleaning so figured it was time to tackle the media server/pc. I guessed right as the radiator is pretty disgusting lol! For all those geeks the specs are a AMD FX8150, 16GB's of DDR3 1600 ram, AMD Radeon R9 290 video card, and Samsung 850 1TB SSD. Over 8 years old and still running 24/7 lol 😎 #chronicillnesses #chronicpainsurvivor #spoonies_united #invisibleillnessawarness #autoimmunediseaseawareness #fibromyalgiaisreal #ehlersdanlossyndromeawareness #ehlersdanlostype3 #ehlersdanlosawareness #elhersdanlos #ehlersdanlos #hypermobileehlersdanlossyndrome #ehlersdanlosawareness2019 #spoonielifestyle #butyoudontlooksickdisease #chronicfatiguewarrior #gastroparesis #autoimmuneawareness #potsawareness #tinyhouseblog #chronicillnessblogger #springcleaningtime #computergeek
Every. Single. Time. #happytuesday
Okay I’m curious... When you’re on vacation, which is more “you?”⠀ A) I just want to relax! Plop me on a beach with a good book and let me chill for hours in total peace. ⠀ B) I want to be active! Let’s explore and take hikes and see the sights and do the things. ⠀ I was chatting with friends about this the other day and I’m dying to know what most people prefer as their ultimate vacay mode of choice!! ⠀
Good morning friends! Today, I want to share something from a friend of mine, Ashley. Here is her story about how Plexus has helped her deal with MS. "I have Multiple Sclerosis. MS is a fairly common disease in which the immune system destroys myelin (the protective covering of the nerves and brain). My most common episodic symptoms have been exhaustion, nerve pain in the neck and throat, intense, sharp, stabbing pain in the head, blurred vision and, Neuralgia (pain caused by nerve damage - mine is large areas of skin that feel as though it's been burned. Even a soft breeze causes intense pain.) I used to experience pain so intense that I would drop to my knees when it hit. I lived off of over the counter pain relievers, and took so many, so often, that it ended up causing stomach problems on top of everything else. I started Plexus last year because I wanted to lose weight. The weight immediately began melting off, which I loved, but I started noticing that my episodes weren't as frequent and had more energy. It was a gradual process, but since February 2014 I've lost 65 lbs, have tons of energy, and all 3 types of neuralgia episodes have been reduced from 4+ a month to 1-2 a year! And no otc pain meds or prescriptions!! If you or someone you know suffers from MS, please reach out to me so see if Plexus might be a good fit for them. . . . . . #chroniclife #autoimmunewellness #autoimmunediseases #butyoudontlooksick #chronicloveclub #chronicillnesses #chronicgirlgang #invisibleillnessawareness #youcandoanything #autoimmunediseasewarrior #chronicinsta #chronicillnesswarrior #nutritiontip #chronicallyawesome #strongwomenunite #girlswithguts #chronicallyill #warriorup #invisibledisease #chronicallyfabulous #invisiblepain #chronicallysick #workingonme #getfittogether #nutritional #journeytofit #multiplesclerosis #multiplesclerosisawareness #multiplesclerosisfighter #multiplesclerosiswarrior
Having one of those days where my brain wants to do so much but my body says, “Hell to the no!” Some days this dispute is more frustrating than others. I try my best to roll with the punches and listen to my body and what it’s saying, but there are times when I wish I could kick my own ass into gear and get stuff done. Alas, today is not one of those days and there will be much resting in my future. . . . . . . . . . . #spoonie #spoonies #spooniegirl #spoonielife #spooniestrong #spoonieproblems #spooniewarrior #spooniesisters #chronicallyill #chronicillness #chronicillnesslife #chronicillnesswarrior #chronicillnesswarriors #chronicillnesses
NOT EVERY DISABILITY IS VISIBLE! - Because of the stigma and misunderstanding surrounding invisible conditions like Crohn’s and Colitis, thousands of people are being subjected to discrimination and stigma — just for trying to use the accessible toilets they urgently need. - This needs to stop. Through the #NotEveryDisabilityIsVisible campaign, @crohnsandcolitisuk are calling on everyone to take action to change signs on accessible toilet doors to help people with invisible conditions like Crohn’s or Colitis, feel more confident using them and the public more aware of invisible disabilities. - Sign up today www.noteverydisabilityisvisible.org.uk - - - - - #thegrumblinggut #beatthestigma #crohnsdisease #ulcerativecolitis #ItTakesGuts #noteverydisabilityisvisible #chronicillnessblogger #disability #disabilityawareness #invisibleillnessawareness #invisibleillnessawarenessweek #invisibledisability #chronicillness #chronicillnessawareness #disabilitypride #chronicillnesslife #invisibleillnesses #invisibleillness #abilitynotdisability #disabilityawarenessday #invisibleillnessawarness #chronicillnesswarrior #invisibleillnesswarrior #chronicillnesses #disabilityrights #disabilityawarenessmonth
This quote is to everyone struggling with any chronic illness... it applies to so many illnesses, IBD, Fibromyalgia, Arthritis, Epilepsy, Cystic fibrosis, MS, ME, Lupus, Diabetes and many more... “You were given this life because you were strong enough to have it!” Your all amazing warriors and never give up! 💖💜 #true #chronicillnesses #spoonies #ibd #fibromyalgia #arthritis #epilepsy #cysticfibrosis #MS #ME #lupus #diabetes #youweregiventhislifebecauseyouarestrongenoughtoliveit #quote
Having an invisible illness is hard because if people could see the pain, struggle and effort it takes to do daily living tasks then people would be less judgemental and be more supportive and understanding too. People don’t realise how much energy it can take to just simply get a wash, dressed, use the toilet facilities, exercise if possible, cook meals and even get out of bed if possible too. Some people are bed bound and some are house bound. It isn’t just physical; it can take a huge effect on our emotional and metal wellbeing too. So this is a huge message to people who don’t understand the impact it has on those who struggle daily. 💜💙💜 #true #invisibleillness #pain #ibd #chronicillnesses #understanding #supportive #dailylivingtasks #effort #autoimmunedisease #crohnsdisease #ulcerativecolitis #mobilityissues #physicalwellbeing #emotionalwellbeing #bedbound #mentalwellbeing #housebound #cookmeals #dress #wash #lessjudgemental #quote
Yesterday I managed to sleep for 17 hours after the excitement of the weekend so I didn't eat. Quorn Southern fried nuggets and parsnips for 4 syns + a chocolate milkshake HexA & 2 syns #chronicillnesssucks . . . . . #chronicfatiguesyndrome #chronicpainsucks #chronicpainlife #chronicillness #chronicillnesses #chronicillnessawareness #edsawareness #chronicfatigue #chronicillnessblogger #chronicpainawareness
This is one of my favorite pieces by @kamredlawsk (featured earlier today). Kam is one of my heroes and greatest inspirations. She's a truly beautiful person, inside and out, a gifted artist and an advocate for the rare disease community. She uses art as a means of channeling emotions with her rare muscle wasting disease, and her work has comforted me many times. Do you create or look at art to help cope? I certainly do! Who are your favorite artists?
People who suffer from Chronic illnesses go through immense pain and these affects different aspects of their life ,so Give a helping hand when you can ,also be patient and kind #ChronicIllnesses . #ChronicPain .
Drop a ❤️ below if you’re working on GROWING as a person today…no matter what your chronic illness is throwing at you! ⠀ “Change is inevitable. Growth is optional.”⠀ — John Maxwell ⠀
I'm tired today... Reposted from @its.not.my.salt - And I honestly think this is one of the hardest things about chronic illness. It’s so unpredictable. Will I be able to go to work and have a relatively ‘normal day’? Or will I sleep for 18 hours and still be exhausted? No wonder it’s hard for others to get their heads around. #chronicinsta #chronicallyill #chronicillness #chronicillnesses #chronicillnesswarrior #spoonie #spoonies #spoonielife #spooniefamily #spooniestrong #spoonieproblems #spooniewarrior #pots #potsie #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #dysautonomia #dysautonomiaawareness #invisibleillness #butyoudontlooksick #relatable #funny #ehlersdanlossyndrome #edsawareness #medicalzebra #zebra - #regrann
Happy Monday everyone I hope the week has gotten off to a good start. I have been to the cinema with youngest to watch dumbo, such a lovely film definitely worth a look. This afternoon was spent playing and a little more organising . I love my kitchen cupboard full of marble dining ware . 🙌🏻. I’ve been digging around in the linen cupboard again too and discovered I’ve bought two almost identical duvets 🤷🏼‍♀️🙈 blooming fibro fog I never remember anything. Must have liked it though to buy twice 🤣🤣🤣 anyone done this or just me ? 🙄 #kitchendecor #kitchenware #kitchencabinets #kitchenwares #organized #organizedlife #organizedhome #organizedkitchen #organizedmom #organizationideas #homeorganization #kitchenorganization #fibromyalgia #fibro #fibrowarrior #fibrofighter #fibrolife #chronicillnesses #chronicpain #chronicpainwarrior #marbleaccessories #diningware #marblekitchen #homeorganizing #homeorganizer #homestyling #homedeco
#Repost @kamredlawsk • • • • • • It’s Rare Disease Day; a day to raise awareness among the public & decision-makers about rare diseases & their impact on our lives. . A rare disease is any disorder that affects small % of the population, therefore provides little profit in a multi-billion dollar sect of high profits in drugs/therapy. . There are 7,000 rare diseases worldwide. 1 in 20 people will be affected in their lifetime. Only 5% of rare diseases have treatment. Half of rare disease patients are children & often fatal. Most rare diseases are difficult to diagnose & considered more treatable compared to cancer/AIDS. . Five misdiagnoses later, I was diagnosed in 2005 with HIBM (aka GNE Myopathy); a genetic muscle wasting disorder that leads most to quadriplegia. I was 1 in 1 million worldwide. Back then there wasn’t a bustling worldwide GNE Myopathy group filled with active patients like we have today. I was truly alone. . DNA errors are necessary for diversity. Geneticists say hereditary diseases are incorporated in the human DNA & some mutations protect continuity of human life. 6,000-10,000 years ago we ALL had brown eyes. . . It's important for the public/private sect to understand so empathy towards those afflicted can spark change, for we are all moving towards death from the moment we are born. Some of us just have a more difficult path during this journey between life & death. . This year is my 20 year anniversary with GNEM. I also have a consuming debilitating chronic illness unrelated to my GNEM. I have been a public advocate for my rare & degenerative muscle condition since 2007. . In this #10yearchallenge pic I was walking & standing with the assist of cane & leg braces. Today I’m permanently in a wheelchair, unable to stand or walk & slowly losing my upper body capabilities...but still smiling. . Most think I have SCI thus independent. But not all disabilities are treated equally. I am closer to quadriplegia & can't drive, transfer, bathe or go to the bathroom alone. My disorder is not just about getting used to a wheelchair, it completely affects my ability to be independent — the most difficult part of this journey.
Turns out Louisiana had one more cool day to give me! . . . In so much pain today. Having an awful period in addition to the bad back problems and an IBS flare. Hopefully I can get through my two appointments tomorrow. Wish me luck and spoons. . . . PS I’m a hyper mobile weirdo that likes finding things I can do with my arms that my husband can’t. For the record, I don’t think I have EDS but I’m seeing a geneticist in July to find out for sure. . . . #chronicpainwarrior #spooniewarrior #chronicillnesswarrior #wheelchairuser #wheelchair #wheelchairgirl #wheelchairwoman #spoonie #spoonielife #chronicillness #chronicallyill #disabled #disabledandcute #disabledandproud #babewithamobilityaid #chronicallyfabulous #disability #chronicpain #hypermobility #heatintolerance #dysautonomia #pots #potssyndrome #potsie #posturalorthostatictachycardiasyndrome #smallfiberneuropathy #ibs #chronicillnesses #chronicillnesslife #lifewithchronicillness
Get out there and live a Monday made up of tiny decisions you can be proud of for the rest of your week!
Så ofattbart 💔 att du är borta kan inte ta in det ännu och imorgon är det 1 månad sen det hände det som förändrade allt 💔😢😢😢 #rip #vilaifrid #livetförändras #sorh #tårar #psykiskohälsa #psynligt #mittliv #personligt #mentalhealth #ptsd #gad #anxiety #panicdisorder #anxietydisorder #chronicpain #chronicillnesses #fibromyalgia
Tag a chronic warrior warrior in the comments below! ✊❤❤ . . . Join the support group @spoonie.collective
Kaffe och stickning. Det har blivit kämpligare med maten igen. Jag trodde att det skulle bli lättare i och med att jag började yoga. Att det skulle bli en motivation för att äta ordentligt så att jag orkade. Men ändå har det blivit svårare på sistone. Jag är trött på dessa upp och nedgångar. När ska det bara få flyta på så att jag hinner samla krafterna. . . . . . . . . . . #mecfs #svmecfs #myalgicencephalomyelitis #chronicillnesses #chronicfatigue #chronicpain #mecfswarrior #fibromyalgi #spoonie #kronisksmärta #kronisksjukdom #depression #ångest #psykiskohälsa #psynligt #introvert #högkänslig #ätstörning #ätstörningsrecovery
Delar av mitt hem. . Det var tungt att gå upp idag, är väldigt trött och har mer ont i huvudet än vanligt. Jag tänker att det kan vara av tatuerandet igår, jag låg rätt obekvämt med armen så att det blev spänningar och armen höll på att domna bort. Men jag är sjukt nöjd med tatueringen. Idag ska jag fortsätta med stickandet av min tröja, det går snabbare än vad jag hade trott och jag har redan kommit en tredjedel av vägen på framstycket. . . . . . . . . . . #mecfs #svmecfs #myalgicencephalomyelitis #chronicillnesses #chronicfatigue #chronicpain #mecfswarrior #fibromyalgi #spoonie #kronisksmärta #kronisksjukdom
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